Wednesday, October 24, 2012
I am struggling with a violent acid reflux attack tonight. Awakened from sleep by this horrific beast, I know the only thing to do is to hang on for dear life and wait for the calm. Once the attack has subsided I am afraid to go back to bed. You see, gravity is my friend during these hurricanes. My small body weakens afterwards and I have no choice but to forge on for some form of sleep as I must pick up life's daily routine the next morning. As they say, no rest for the weary.
Friday, October 12, 2012
My journey as an EA/TEF survivor has been difficult, experimental, sad, and unknown. As I have taken a new turn in this strange journey there seems to be the proverbial light at the end of the tunnel to my understanding. I am becoming more aware that EA/TEF cannot be cured just managed. As I attended the 2nd Annual EA Conference in Montreal, Quebec, Canada, this past week, I learned a great deal more about this rare birth defect. The most important thing I realized after the conference, is that the world is taking notice in making great strides in bringing awareness to the forefront. My new journey is not to be cured personally, but to bring awareness of EA/TEF and hope that one day this birth defect will be no more. THIS IS MY WISH!