tag:blogger.com,1999:blog-67824249359531323222024-03-05T00:40:29.779-08:00Christy's Courage - Living with EA/TEFAnonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-6782424935953132322.post-4945125518157692762018-01-18T12:45:00.001-08:002018-01-18T12:45:51.465-08:00Christy is Back<br />
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<strong>Welcome back Everyone!</strong><br />
<br />
I have been gone for a while, as you have figured out by now.<br />
<br />
In 2015 I was diagnosed with Rheumatoid Arthritis. The RA is currently under control with meds, thanks be to God and modern medicine.<br />
<br />
Due to the RA I experience extreme fatigue, so trying to hold down a full time job, part time non profit, and a household is a bit more challenging. <br />
<br />
With that update I wonder just what God has in mind for the remainder of my life, hummm<br />
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I will continue to be patient even though it wears thin at times, strong until I need to recharge, and continue to try to make a difference for those I can reach with EA.<br />
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Peace & Blessings<br />
Christy<br />
<br />Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-80852022635948827742014-01-12T02:58:00.000-08:002014-01-12T02:59:48.150-08:00WalkingWalking:<br />
<br />
We do lots of walking, up hills, down hills, through streets, across bridges, on pavement, in circles, with groups, for charity, for our health, and many other reasons we walk. I think mainly we walk to take us from point A to point B. My point to walking is, it takes our legs for us to be able to walk. I am very thankful to have both of my legs, not toned, muscular legs, but none the less my very on set. However, I find it unsettling to my soul when someone ask me why I limp. Mind you I don't limp all the time, only when I am tired or am wearing those high heel shoes that are not good for posture or feet anyway. When asked this question it is not something I want to expound on as it would be a lengthy explanation leading to my life history, which is no ones business except those who I choose to share it with. I ALWAYS get extremely nervous answering this question, goes back to childhood wanting not to be different, and I am stumped for an answer so, most of the time I am not sure what I answer because I have one of those out of body experiences where you say something but you don't remember what. As age has conquered some of my fears I try to handle this question with courage and the realization of giving a short answer, be it the truth or my choice at the time, will send them on their way. Yes, we all look at people limping wondering what has caused them to walk in this manner, is it because we are curious or just plain ignorant and uncaring of others feelings? Next time you find yourself staring at someone walking in a manner you find unlike your perfect stride, try to put yourself in their circumstances and your glare should become softer and kinder. <br />
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Now go out and walk!Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-20164202983458862012013-12-05T20:19:00.002-08:002013-12-05T20:21:15.447-08:00Turtlenecks<span style="color: black;"><span style="font-size: large;">Turtlenecks; red, green, blue, yellow, white, purple, pink, long sleeve, short sleeve, mock style, just think; Every morning, noon and night I must wear them to the brink, to cover up my scars and that just plain stinks! One day I will shed these high collars and return them to their proper place the Turtle!</span> </span>Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-46689576891136341892013-06-04T21:02:00.000-07:002013-06-04T21:02:37.428-07:00Looking In The Mirror Looking in the mirror what do I see?<br />
Two big, brown eyes staring back at me.<br />
<br />
Looking in the mirror what do I see?<br />
Dark wavy hair flowing so free.<br />
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Looking in the mirror what do I see?<br />
A smile so bold it could capture the sea.<br />
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Looking in the mirror what do I see?<br />
The reflection of a girl that is truly me.<br />
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Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-62885220025163789762013-04-21T09:38:00.001-07:002013-04-21T09:38:33.081-07:00Summer Time<span style="color: black;">SUMMER TIME: I love the heat of the summer, tanning by the pool or ocean, smell of freshly mowed grass, flip flops, beautiful green foliage everywhere, outside festivals, and the length of the daylight hours. </span><br />
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<span style="color: black;">My least favorite and hardest thing to cope with during the summer is what to wear. Due to my many surgeries I have a road map all over my torso, not to mention the under the skin bump, better known as my esophagus. This makes it <u><strong>EXTREMELY</strong></u> difficult to find a swimsuit, tops and shirts that camouflage my scars, yet keep me cool. Each time I go to shop for these items I all but break down into tears because of this daunting task. Sometimes I handle it better than others. This brings me to two different events.</span><br />
<span style="color: black;"></span><br />
<span style="color: black;">Just recently I was shopping for high neck tops/shirts for the summer. As I was looking through the racks it dawned on me that all the other Ladies in the same store did not know how blessed they were to choose whatever fashion appealed to them. I took about eight pieces to the dressing room and came out with two. One that zipped up the front and the other that buttoned to the top. How ridiculous I will look this summer with these two shirts up to my neck, but it is better than the alternative I would experience. I made my purchases and later in the day called my Mother to tell her about my conquest of two shirts.</span><br />
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The other shopping excursion occurred earlier than the one just described. I was again shopping for tops/shirts and I had an epiphany, that even though I could not choose what I would really like to wear I had money to buy what I could wear and thought that was a blessing.<br />
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The swimsuit issue was resolved by my more than <strong><u>EXTRAORDINARY</u></strong> Mother. She found a wonderful Lady who professionally designs gowns, swimsuits, etc for pageants. This beautiful woman graciously made me many swimsuits to die for. I now have one of a kind suits and proudly wear them at the pool and beach. <br />
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Both of these shopping events probably happen to most women for some reason or another. We must remember when we are thinking that someone has more choices than we do that is not necessarily so. Be happy in the skin we are in for someone else's challenges may be greater.Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-72774400556029984742013-02-17T20:09:00.000-08:002014-01-12T03:01:52.560-08:00What is a Miracle?What is a miracle? Webster's definition of miracle is: <span style="color: red;">"an extraordinary event manifesting divine intervention in human affairs".</span> <br />
<br />
A Doctor once told my parents, "The only thing that will save your baby is a miracle".<br />
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So, if that was the truth, then I must be a miracle. One would think that a miracle has special privileges or magical attributes. With my miracle status why has my life been full of struggles, bad choices, and not bluebirds of happiness? The only one who knows the answer to that question is the one who preformed the miracle of saving my life, God. I guess once the miracle of life was given to me, it was up to me to find those bluebirds of happiness. As I have gotten older life has become somewhat easier however, I am still struggling to define why am I a miracle?Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-68105090329190398962013-01-05T05:26:00.004-08:002013-01-05T05:28:17.216-08:00Jeopardy Question<span style="background-color: white;">What is mental or moral strength to venture, persevere, and withstand danger, fear, or difficulty?</span><br />
<br />
<br />
<span style="background-color: white;"></span><br />
<span style="background-color: white;">Answer: <strong>Courage</strong></span>Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-22422590873144232572012-12-18T14:08:00.001-08:002012-12-18T14:08:09.805-08:002012 Newsletter<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhr2hRonYZARLWMS03XurBEZit5f7AcMEb6JnvVE5c0SgCb44CyYppW3thTT4MG9LEJVMPvBh6EVOAqm1szLsCpjoE2M8PRlpLIORPvduQsGw-zuLG1r-JEAv_tRdLcNmEs1gaQGWW5RW_w/s1600/001+newsletter+(1).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhr2hRonYZARLWMS03XurBEZit5f7AcMEb6JnvVE5c0SgCb44CyYppW3thTT4MG9LEJVMPvBh6EVOAqm1szLsCpjoE2M8PRlpLIORPvduQsGw-zuLG1r-JEAv_tRdLcNmEs1gaQGWW5RW_w/s640/001+newsletter+(1).jpg" width="640" /></a></div>
<br />Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-32963854582363757582012-10-24T20:44:00.001-07:002012-10-24T21:07:23.831-07:00Struggling with the "Beast"I am struggling with a violent acid reflux attack tonight. Awakened from sleep by this horrific beast, I know the only thing to do is to hang on for dear life and wait for the calm. Once the attack has subsided I am afraid to go back to bed. You see, gravity is my friend during these hurricanes. My small body weakens afterwards and I have no choice but to forge on for some form of sleep as I must pick up life's daily routine the next morning. As they say, no rest for the weary. Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com1tag:blogger.com,1999:blog-6782424935953132322.post-31552221564521947162012-10-12T19:49:00.000-07:002012-10-24T20:48:12.420-07:00My journey as an EA/TEF survivor has been difficult, experimental, sad, and unknown. As I have taken a new turn in this strange journey there seems to be the proverbial light at the end of the tunnel to my understanding. I am becoming more aware that EA/TEF cannot be cured just managed. As I attended the 2nd Annual EA Conference in Montreal, Quebec, Canada, this past week, I learned a great deal more about this rare birth defect. The most important thing I realized after the conference, is that the world is taking notice in making great strides in bringing awareness to the forefront. My new journey is not to be cured personally, but to bring awareness of EA/TEF and hope that one day this birth defect will be no more. THIS IS MY WISH! Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-14400922437287500402012-09-20T21:03:00.003-07:002012-09-20T21:03:48.836-07:00<div style="text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUvgIX4tRovTLaanEjP8F4TSwgVtDoIikwTs3ZKOcZYLe_atyo8PyOzpTov4uelYggFR-XNAnMsWL6nUPwg3lxbJ1G8aZ8IKRndExGogRZP0mneZ-T0cRbU4HuoVhRu8aDaHZWuMNbX666/s1600/chr.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUvgIX4tRovTLaanEjP8F4TSwgVtDoIikwTs3ZKOcZYLe_atyo8PyOzpTov4uelYggFR-XNAnMsWL6nUPwg3lxbJ1G8aZ8IKRndExGogRZP0mneZ-T0cRbU4HuoVhRu8aDaHZWuMNbX666/s1600/chr.jpg" /></a></div>
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Looking forward to attending the 2nd Annual Ea Conference in two weeks. I can't wait to meet individuals like myself and hear my Mother share her experiences of raising a child with EA/TEF with parents who are currently maneuvering through what she has tackled. I hope to meet with Dr Russell Jennings, a renowned EA/TEF surgeon, to express Christy's Courage Foundation goals and gather ideas he may have on research to prevent or correct EA/TEF before birth. Looking forward to bringing back information to share with everyone. Praying for safe travels and wisdom.<br />
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Peace & Blessings<br />
<span style="background-color: white;">Christy </span><br />
<br />
<a href="http://eamontreal2012.com/">http://eamontreal2012.com/</a>Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-82041648985204441922012-08-28T13:16:00.000-07:002012-08-28T13:16:29.647-07:00History of EA/TEFHello Christy's Courage Crew!<br />
<br />
I have been wondering about when the first actual diagnosis of EA/TEF was discovered and found this piece of information about the History of the Procedure. <br />
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<span style="font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman';">The recorded history of EA dates back as early as 1670 when Durston described the presence of a blind-ending upper esophageal pouch in a conjoined twin; however, surgical therapy for EA was not suggested until 1869. Steele made the first attempt at surgical correction for EA in 1888. He performed a gastrostomy in a patient with pure EA, hoping to perforate what he suspected to be an esophageal membrane. In 1913, Richter proposed fistula ligation with anastomosis of the 2 esophageal ends for EA with TEF. Although he considered primary repair to be the best option, he also acknowledged the impracticality of this procedure at the time. Instead, he ligated the fistula intrathoracically. His patient did not survive long enough to attempt an esophageal anastomosis. <o:p></o:p></span></div>
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<span style="font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman';">The first patient to survive a congenital esophageal anomaly was born in 1931 with a TEF and no atresia. The fistula was repaired with a transtracheal incision in 1935, the same year that the first survivor of EA was born. The infant with EA was treated with gastrostomy feedings and a jejunal interposition. Both of these children had an isolated defect (atresia or fistula), and treatment was successful without a thoracotomy. The treatment for EA with TEF proved to be more difficult. </span><a href="http://www.medscape.com/resource/pneumonia" target="_self"><span style="color: #004276; font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; text-decoration: none; text-underline: none;">Pneumonia</span></a><span style="font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman';">, mediastinitis, poor airway control, and fluid management problems were frequent complications. <o:p></o:p></span></div>
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<span style="font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman';">In 1936, Lanman was the first to perform a repair with an extrapleural approach. The first patient to undergo the technique survived only 3 hours. In 1938, Shaw performed the first fistula ligation and primary anastomosis of the esophagus for EA-TEF. This patient died 12 days postoperatively from a transfusion reaction. <o:p></o:p></span></div>
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<span style="font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman';">In 1939, the first 2 successful treatments of patients with EA-TEF occurred independently, one day apart, by Leven and Ladd. They performed staged repairs involving gastrostomy placement followed by fistula ligation 5 weeks and 4 months later, respectively. Cervical esophagostomies, the use of jejunal interposition, and an antethoracic skin tube for esophageal reconstruction were use in the years to follow. <o:p></o:p></span></div>
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<span style="font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman';">Haight completed the first successful primary repair in 1941. The procedure involved a left extrapleural approach, fistula ligation, and a single-layer esophageal anastomosis. Haight later switched to a right extrapleural approach and modified his technique to a 2-layer telescoping anastomosis in an attempt to diminish leak risk. <o:p></o:p></span></div>
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<span style="font-family: 'Times New Roman','serif'; font-size: 12pt; mso-fareast-font-family: 'Times New Roman';">By 1944, one third of the children with EA-TEF survived primary repair. Advances in preoperative preparation, antibiotic treatment, and intraoperative and postoperative management contributed to more favorable survival rates. Despite the increased success, leaks, strictures, and lower esophageal segment dysmotility were common postoperative problems. <o:p></o:p></span></div>
Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-53025165258495630942012-08-11T17:46:00.000-07:002012-08-11T17:47:43.013-07:00<strong>Hello Christy's Courage Crew!</strong><br />
<br />
I have a very exciting project I am working on to promote EA awareness in January 2013! Stay tuned for more information.<br />
<br />Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-40251405104394096662012-07-26T19:55:00.001-07:002012-07-26T21:33:54.974-07:00Love Language Campaign<div class="separator" style="clear: both; text-align: center;">
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<span style="background-color: white; color: #674ea7; font-size: large;">Beginning 7/26/12 check out Christy's Courage Love Language Campaign at </span><a href="http://www.indiegogo.com/"><span style="background-color: white; color: #674ea7; font-size: large;">www.indiegogo.com</span></a><span style="background-color: white; color: #674ea7; font-size: large;">. This campaign is to help start a scholarship to fund speech and feeding therapies for children with EA/TEF. Your $1.00 will make a difference.</span>Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-18915046895670101712012-07-08T19:43:00.001-07:002012-07-08T19:43:07.871-07:00I would like to share the 5 types of EA/TEF, Esophageal Atresia/Tracheoesophageal Fistula:<br />
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<strong><span style="background-color: white; color: #cc0000;">Type A</span></strong> (7.7% of cases): Esophageal atresia in which both segments of the esophagus end in blind pouches. Neither segment is attached to the trachea.<br />
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<span style="color: #cc0000;">Ty<strong>pe B</strong></span> (0.8%): Esophageal atresia with tracheoesophageal fistula in which the upper segment of the esophagus forms a fistula to the trachea. The lower segment of the esophagus ends in a blind pouch. This condition is very rare.<br />
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<strong><span style="color: #cc0000;">Type C</span></strong> (86.5%): Esophageal atresia with tracheoesophageal fistula, in which the upper segment of the esophagus ends in a blind pouch (EA) and the lower segment of the esophagus is attached to the trachea (TEF).<br />
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<strong><span style="color: #cc0000;">Type D</span></strong> (0.7%): Esophageal atresia with tracheoesophageal fistula, in which both segments of the esophagus are attached to the trachea. This is the rarest form of EA/TEF.<br />
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<strong><span style="color: #cc0000;">Type E</span></strong> (also called Type H) (4.2%): Tracheoesophageal fistula in which there is no esophageal atresia because the esophagus is continuous to the stomach. Fistula is present between the esophagus and the trachea.<br />
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Below are diagrams of the five different types of EA/TEF.<br />
<table align="center" border="1" cellpadding="3"><tbody>
<tr><th width="195">TYPE</th><th width="219">DESCRIPTION</th><th width="248">DIAGRAM</th></tr>
<tr><th width="195"><span style="color: #cc0000;">Type A</span><br /><br /><em>Esophageal Atresia<br /></em>(7.7%)</th><td width="219">Both segments of the esophagus end in blind pouches. Neither segment of esophagus is attached to the trachea.</td><td width="248"><img height="153" src="http://www.eatef.org/images/type_a.gif" width="242" /></td></tr>
<tr><th width="195"><span style="color: #cc0000;">Type B</span><br /><br /><em>Esophageal Atresia with Upper Tracheoesophageal Fistula</em><br /><br /> (0.8%)</th><td align="left" width="219">The upper segment of the esophagus forms a fistula to the trachea (TEF). The lower segment of the esophagus ends in a blind pouch (EA). This is a very rare form of EA/TEF.</td><td width="248"><img height="153" src="http://www.eatef.org/images/type_b.gif" width="242" /></td></tr>
<tr><th width="195"><span style="color: #cc0000;">Type C</span><br /><br /><em>Esophageal Atresia with Lower Tracheoesophageal Fistula<br /></em>(86.5%)</th><td width="219">The upper segment of the esophagus ends in a blind pouch (EA). The lower segment of the esophagus is attached to the trachea (TEF). This is the most common type of EA/TEF.</td><td width="248"><img height="153" src="http://www.eatef.org/images/type_c.gif" width="242" /></td></tr>
<tr><th width="195"><span style="color: #cc0000;">Type D</span><em><br /><br /> Esophageal Atresia with Upper and Lower Tracheoesophageal Fistula</em><br /><br /> (0.7%)</th><td width="219">Both segments of the esophagus are attached to the trachea. This is the rarest form of EA/TEF.</td><td width="248"><img height="153" src="http://www.eatef.org/images/type_d.gif" width="242" /></td></tr>
<tr><th width="195"><span style="color: #cc0000;">Type E (also called Type H)</span><br /><em>Tracheoesophageal Fistula</em><br /><br /> (4.2%)</th><td width="219">There is no esophageal atresia as the esophagus is continuous to the stomach. However, fistula is present between the esophagus and the trachea.</td><td width="248"><img height="153" src="http://www.eatef.org/images/type_h.gif" width="242" /></td></tr>
</tbody></table>Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-35110737778584464112012-06-17T17:47:00.002-07:002012-06-17T17:47:47.235-07:00<h1 class="title">
Christy's Courage - Living with EA/TEF </h1>
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I am sharing a testimony from a Mother whose child has EA/TEF. Meeting this family and our new friendship has reconfirmed for me that the journey I am on is my purpose. Here is Abagayl's story: </div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">July 21,
2010</span></span><span style="font-size: 10pt; line-height: 115%;"><o:p><span style="font-family: Calibri;"> </span></o:p></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">This is the testimony
of the last 4 years of God’s intervention with my daughter Abagayl’s birth
defect/disabilities.<span style="mso-spacerun: yes;"> </span>I pray that it will
bless and encourage you as you serve our Lord.</span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">My husband
and I had always felt that if you worked hard, were committed and ethical in
your performance; you would be successful.<span style="mso-spacerun: yes;">
</span>This is the road we traveled for many years as I climbed the corporate
ladder to achieve the position of a Finance & Commodity Purchasing
Manger.<span style="mso-spacerun: yes;"> </span>My husband, had worked
in his family business of three generations as a cattle procurement and sales
manager.<span style="mso-spacerun: yes;"> </span>Basically, taking over the
family business and learning more each day.<span style="mso-spacerun: yes;">
</span>With this false security we earned in excess of $150,000 a year.<span style="mso-spacerun: yes;"> </span>As we began to succeed, we sold our small
home and farm and moved closer to my family into a much larger home.<span style="mso-spacerun: yes;"> </span>This was justified by our growing number of
children.<span style="mso-spacerun: yes;"> </span>We attended church regularly,
but did not live for God.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">In February
2005 my husband came home with the first of many blows to come.<span style="mso-spacerun: yes;"> </span>His father was getting a divorce and the
family business would be shut down by spring.<span style="mso-spacerun: yes;">
</span>The following week I discovered what the doctors thought was appendicitis
was actually a new addition to our family.<span style="mso-spacerun: yes;">
</span>I had been told that I was blessed to ever have children and not to
expect such a thing in the future, so this was quite an untimely surprise.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">For the 1<sup>st</sup>
time in his life, my husband, had to draw unemployment.<span style="mso-spacerun: yes;"> </span>It seems his profession was not easily
transferred to another.<span style="mso-spacerun: yes;"> </span>He tried various
sales positions as I struggled with part-time and being bed-ridden during the
last 4 months of pregnancy.<span style="mso-spacerun: yes;"> </span>It was at
that time that we decided to restart the family business from our home.<span style="mso-spacerun: yes;"> </span>We were beginning to make progress.<span style="mso-tab-count: 1;"> </span><o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">Our daughter
was born premature, 8/25/06.<span style="mso-spacerun: yes;"> </span>Abagayl was
born 4lbs 15 oz.<span style="mso-spacerun: yes;"> </span>This was a surprise,
all ultrasounds had showed a normal 7 lb little girl even at 37 weeks
gestation.<span style="mso-spacerun: yes;"> </span>The pieces began to make
since.<span style="mso-spacerun: yes;"> </span>Abagayl (Abba) immediately began
to turn blue and was taken away from us to nursery and then to NICU (neonatal
intensive care unit).<span style="mso-spacerun: yes;"> </span>It was determined
she had a serious deformity.<span style="mso-spacerun: yes;"> </span>She was
born with Esophageal Atresia with Tracheal Esophageal Fistula (look up EA/TEF
type C).<span style="mso-spacerun: yes;"> </span>Basically, her esophagus at the
top had stopped growing at 6 weeks gestation.<span style="mso-spacerun: yes;">
</span>The lower portion attached to her stomach had grown up and attached
itself to her trachea (windpipe).<span style="mso-spacerun: yes;"> </span>She had
many hurdles to overcome before surgery could be possible.<span style="mso-spacerun: yes;"> </span>During this time, my company called me and
said, “We need you back here this week or we’ll have to make other
arrangements.”<span style="mso-spacerun: yes;"> </span>I told them I could not
leave her.<span style="mso-spacerun: yes;"> </span>At that point, I was released
and started paying Cobra insurance. <span style="mso-spacerun: yes;"> </span>We
waited the month and then surgery was apparently successful.<span style="mso-spacerun: yes;"> </span>We gave her the first bottle there and it was
such a miracle.<span style="mso-spacerun: yes;"> </span>We were to stay one week
in NICU for observation.<span style="mso-spacerun: yes;"> </span>As the week
progressed I noticed changes in the way she coughed when taking a bottle.<span style="mso-spacerun: yes;"> </span>They assured me all was fine, and we took our
precious little girl home.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">From that
day, the coughing increased and she began to stop breathing and turn blue with
me.<span style="mso-spacerun: yes;"> </span>I finally convinced the specialist
to take a look.<span style="mso-spacerun: yes;"> </span>Long story short the
surgery failed and the esophagus had reattached itself to the windpipe causing
the choking.<span style="mso-spacerun: yes;"> </span>We were only home a few
days.<span style="mso-spacerun: yes;"> </span>From there we spent the next 2 ½
months with repeat failing surgeries.<span style="mso-spacerun: yes;">
</span>This time in the pediatric intensive care (PICU).<span style="mso-spacerun: yes;"> </span>We could not return to the nursery because
she had been exposed to a non-sterile environment.<span style="mso-spacerun: yes;"> </span>She was put beside children and teenagers
with all sorts of infections.<span style="mso-spacerun: yes;"> </span>The last
surgery was experimental.<span style="mso-spacerun: yes;"> </span>The specialist
called on some colleagues and they suggested stitching and using tissue glue to
hold everything together.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">During this
whole time, I had been searching God’s word to strengthen and guide me.<span style="mso-spacerun: yes;"> </span>I played Christian music and encouraged as
many parents and children as I could in the PICU.<span style="mso-spacerun: yes;"> </span>My husband and I took turns between the
hospital and our then three year old son Austin.<span style="mso-spacerun: yes;"> </span>Income was forgotten, but we continued to
try.<span style="mso-spacerun: yes;"> </span>Our pastor had been by our side
faithfully.<span style="mso-spacerun: yes;"> </span>As I searched, God led me to
John 5: 6-9.<span style="mso-spacerun: yes;"> </span>Paraphrasing:<span style="mso-spacerun: yes;"> </span>“Do you wish to be made well?<span style="mso-spacerun: yes;"> </span>Take up your mat and walk.”<span style="mso-spacerun: yes;"> </span>I asked everyone of faith what God was trying
to tell me, but they seemed they couldn’t hear.<span style="mso-spacerun: yes;">
</span>Then, I heard the true meaning by the Holy Spirit.<span style="mso-spacerun: yes;"> </span>It said, “She is healed, feed her”.<span style="mso-spacerun: yes;"> </span>I praised God, and said, “Thank you Lord for your
mercy.<span style="mso-spacerun: yes;"> </span>As soon as the test comes back,
yes, Lord, we will feed her.”<span style="mso-spacerun: yes;"> </span>I waited
for the world to confirm the promise I had been given.<span style="mso-spacerun: yes;"> </span>I had never walked just in faith before and I
doubted Him.<span style="mso-spacerun: yes;"> </span>We went down for the test
to see if there were any more leaks.<span style="mso-spacerun: yes;"> </span>I
waited so excited to give Abba a bottle again.<span style="mso-spacerun: yes;">
</span>Her surgeon came in and said, “I’m sorry, the leak is still
present.”<span style="mso-spacerun: yes;"> </span>I completely fell apart, and
the surgeon left to give me some time.<span style="mso-spacerun: yes;"> </span>I
cried out to God of His promise and my doubting spirit.<span style="mso-spacerun: yes;"> </span>My body went limp and I knew I was lost.<span style="mso-spacerun: yes;"> </span>At that moment the surgeon returned, probably
on 5-10 minutes later.<span style="mso-spacerun: yes;"> </span>He apologized and
said, “I am so sorry.<span style="mso-spacerun: yes;"> </span>We have been
reading the test wrong.<span style="mso-spacerun: yes;"> </span>The leak is repaired;
I’ll go get her a bottle!”<span style="mso-spacerun: yes;"> </span>Praise
God!<span style="mso-spacerun: yes;"> </span>The surgeon discussed with me that
we really could have fed her earlier if we had just understood the way her
esophagus had healed.<span style="mso-spacerun: yes;"> </span>It just looked
like a leak.<span style="mso-spacerun: yes;"> </span>Again confirming that I
could have fed her when God told me to!<span style="mso-spacerun: yes;">
</span>Me, of little faith.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">We stayed
about two more weeks to strengthen her from all the surgeries, and then we were
home 10/28/06.<span style="mso-spacerun: yes;"> </span>I have given this
testimony to many.<span style="mso-spacerun: yes;"> </span>There question was
always, “What would you do next time?”<span style="mso-spacerun: yes;"> </span>I
always replied that I hoped my faith was stronger now, but secretly I pleaded
with God not to test me again, not my daughter.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">We had been
denied Medicaid, financial assistance, etc.<span style="mso-spacerun: yes;">
</span>All said that Abba’s condition would not last more than 1 year.<span style="mso-spacerun: yes;"> </span>That was the criteria they felt we didn’t
meet.<span style="mso-spacerun: yes;"> </span>We slowly paid the bills and
health insurance.<span style="mso-spacerun: yes;"> </span>We prayed that they
were right and that within a year all would be ok.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">We had
speech and physical therapists in the home as she was quarantined for two
years.<span style="mso-spacerun: yes;"> </span>She could not be exposed to
anything with her weak state.<span style="mso-spacerun: yes;"> </span>At 9
months old, stage 2 food or any infant cereal, she began to choke and turn blue
again.<span style="mso-spacerun: yes;"> </span>Many cases of aspiration pneumonia.<span style="mso-spacerun: yes;"> </span>All tests showed an open esophagus and no
leak.<span style="mso-spacerun: yes;"> </span>I began to again seek the Lord for
guidance.<span style="mso-spacerun: yes;"> </span>He said, “Feed her.”<span style="mso-spacerun: yes;"> </span>Oh no, not this again!<span style="mso-spacerun: yes;"> </span>In faith, I began to pray before and after
feeding Abba.<span style="mso-spacerun: yes;"> </span>Before I would ask God
what to feed her and after I would thank Him for allowing her to eat.<span style="mso-spacerun: yes;"> </span>Only in faith did she eat.<span style="mso-spacerun: yes;"> </span>Her specialist said I was killing her.<span style="mso-spacerun: yes;"> </span>That if I continued, she would choke and
there would be nothing to do.<span style="mso-spacerun: yes;"> </span>I did not
accept this.<span style="mso-spacerun: yes;"> </span>Her pediatrician agreed,
she was eating the special diet I had created, and was beginning to gain
weight.<span style="mso-spacerun: yes;"> </span>He encouraged me and I began to
seek wisdom and another specialist.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">The diet God
led me to was simple but very time consuming.<span style="mso-spacerun: yes;">
</span>I cooked everything from potato and onion to minestrone soup.<span style="mso-spacerun: yes;"> </span>When it was cooked, I then pureed the
contents, put them in muffin pans to freeze, popped them out and put them in a
container.<span style="mso-spacerun: yes;"> </span>At meal time, I micro waved
the frozen circle added a little broth and SHE COULD EAT!<span style="mso-spacerun: yes;"> </span>With prayer she could also eat some deli
meat, non-gluten crackers, etc.<span style="mso-spacerun: yes;"> </span>There
were no rules.<span style="mso-spacerun: yes;"> </span>Only guidance from above
as to what <u>not </u>to give her.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">One day
while listening to 106.9 The Light (Christian music), I heard about Cincinnati,
Ohio’s Children Hospital.<span style="mso-spacerun: yes;"> </span>The program
was about a girl from Africa that had a life-threatening illness and the
hospital was covering all costs to get the girl to them.<span style="mso-spacerun: yes;"> </span>End of story the girl was healed.<span style="mso-spacerun: yes;"> </span>I began to pursue information about this
hospital.<span style="mso-spacerun: yes;"> </span>Guess what I found?<span style="mso-spacerun: yes;"> </span>The #1 specialist for children born with
EA/TEF and a special feeding team with members from all disciplines of
medicine.<span style="mso-spacerun: yes;"> </span>Dr. Kocmond, Abagayl’s
pediatrician, immediately began the paperwork of necessity.<span style="mso-spacerun: yes;"> </span>Ohio began the red tape of getting approval
from Blue Cross/Blue Shield.<span style="mso-spacerun: yes;"> </span>I persisted
all the way to court for Abagayl’s Medicaid and at 1 ½ she was approved!<span style="mso-spacerun: yes;"> </span>I felt a real change was coming!<span style="mso-spacerun: yes;"> </span>This was approximately February 2008.<span style="mso-spacerun: yes;"> </span>Months crawled by as the feeding team
called.<span style="mso-spacerun: yes;"> </span>They were working on everything,
but no luck yet.<span style="mso-spacerun: yes;"> </span>I cried out once more
to God, You are with us, Is there no one to do your will?”<span style="mso-spacerun: yes;"> </span>You guessed it, I got the phone call and we
were set for full tests, top to bottom, for July 2008.<span style="mso-spacerun: yes;"> </span>I had to be patient.<span style="mso-spacerun: yes;"> </span>I continued home therapy with what I could
read.<span style="mso-spacerun: yes;"> </span>We continued the feeding process
and were making some progress as more teeth came in.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">As we drove
to Ohio I was gripped with fear.<span style="mso-spacerun: yes;"> </span>The
original surgeon had told me that if any other doctor touched her, the
esophagus could fall apart.<span style="mso-spacerun: yes;"> </span>He said her
condition was very rare and no one would understand.<span style="mso-spacerun: yes;"> </span>We were going to be staying a week for full
observation.<span style="mso-spacerun: yes;"> </span>My pastor even came up with
us.<span style="mso-spacerun: yes;"> </span>The night before we were to go into
the hospital I prayed through the night.<span style="mso-spacerun: yes;">
</span>I claimed every promise that could be found and I promised that I would
not forget and I would witness of His glory and mercy.<span style="mso-spacerun: yes;"> </span>Sometimes, I think God has a sense of
humor.<span style="mso-spacerun: yes;"> </span>For at the time I said I would
witness of Him, I also said Lord be patient with me, You know me and I am timid
in front of people, teach me how.<span style="mso-spacerun: yes;"> </span>It was
5:00 am now and I felt I needed to “walk on” with the day ahead.<span style="mso-spacerun: yes;"> </span>Again, God had a different plan.<span style="mso-spacerun: yes;"> </span>I could feel and hear him telling me to go to
the front desk and witness of Abagayl’s original healing and feeding
story.<span style="mso-spacerun: yes;"> </span>I of course told God it was 5:00
(like he doesn’t know time).<span style="mso-spacerun: yes;"> </span>I said no
one will be there, ok, fine, I’ll go.<span style="mso-spacerun: yes;"> </span>I
headed toward the desk and saw the shade pulled down and locked.<span style="mso-spacerun: yes;"> </span>I was very relieved and began to walk on
by.<span style="mso-spacerun: yes;"> </span>God tugged again and I stopped.<span style="mso-spacerun: yes;"> </span>From behind the shade I could hear a woman’s
voice singing to God’s glory.<span style="mso-spacerun: yes;"> </span>I knew I
was in for it then.<span style="mso-spacerun: yes;"> </span>I humbly went to the
locked, side door.<span style="mso-spacerun: yes;"> </span>I began to knock,
hoping she wouldn’t answer.<span style="mso-spacerun: yes;"> </span>No I didn’t
get off that easy.<span style="mso-spacerun: yes;"> </span>A lady about 55
slowly opened the door.<span style="mso-spacerun: yes;"> </span>I begged her to
be patient with me.<span style="mso-spacerun: yes;"> </span>I told her I was
here with my 1 ½ year old to go to a specialist at the hospital.<span style="mso-spacerun: yes;"> </span>I told her what God had asked and I began my
testimony.<span style="mso-spacerun: yes;"> </span>Her face warmed and then
began to smile and even to be “lifted” a little.<span style="mso-spacerun: yes;"> </span>When I had stumbled through my first
testimony, she hugged me and began to speak.<span style="mso-spacerun: yes;">
</span>She was born with one leg shorter than the other.<span style="mso-spacerun: yes;"> </span>It had troubled and pained her so.<span style="mso-spacerun: yes;"> </span>When she was able to work, walking made
blisters on the one foot.<span style="mso-spacerun: yes;"> </span>She said she
had been down my road.<span style="mso-spacerun: yes;"> </span>The lady
explained how at one prayer service God had healed her, but she wouldn’t tell
anyone.<span style="mso-spacerun: yes;"> </span>She was afraid the healing wasn’t
real or that they would think she was crazy.<span style="mso-spacerun: yes;">
</span>She stood there squarely, looking down at her feet and said, “Have
faith, He is with you.”<span style="mso-spacerun: yes;"> </span>What I thought
was a test for me was really God’s way of sending me to one who could show me
through their own words that a testimony is nothing more than being honest and
open with people about what God has done in your life.<span style="mso-spacerun: yes;"> </span>What a blessing to learn you do not have to
be a scholar to encourage others and to have great faith.<span style="mso-spacerun: yes;"> </span>Amen!<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">We set off
for the hospital and the first swallowing test came back fine.<span style="mso-spacerun: yes;"> </span>No restrictions they said.<span style="mso-spacerun: yes;"> </span>We were very discouraged.<span style="mso-spacerun: yes;"> </span>She even ate a cookie for them without choking
(her 1<sup>st</sup> one ever!)<span style="mso-spacerun: yes;"> </span>The next
day was meeting all the specialist and preparing for exploratory Flexible Bronchoscopy,
Upper Endoscopy and possible dilatation.<span style="mso-spacerun: yes;">
</span>We were trying to rule out a Diverticulum or goiter.<o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">The day of,
I was able to put Abba to sleep myself and lay her onto the operating
table.<span style="mso-spacerun: yes;"> </span>This was so comforting to
me.<span style="mso-spacerun: yes;"> </span>I knew she wasn’t scared without me
now that she was asleep.<span style="mso-spacerun: yes;"> </span>Then we waited.<span style="mso-spacerun: yes;"> </span>About 45 minutes later, I met Dr. Kaul (the
#1 specialist I discussed earlier).<span style="mso-spacerun: yes;"> </span>He
began to draw and explain as other specialists entered the room also.<span style="mso-spacerun: yes;"> </span>Abba’s esophagus had shrunk down to 6mm from
all the scar tissue at the site.<span style="mso-spacerun: yes;"> </span>It
needed to be 16mm.<span style="mso-spacerun: yes;"> </span>All the doctors
listened as I explained how I fed her.<span style="mso-spacerun: yes;"> </span>They
could not imagine how she could eat and that she had NEVER been on a feeding
tube!<span style="mso-spacerun: yes;"> </span>Next the pulmonary doctor spoke
up,<span style="mso-spacerun: yes;"> </span>he explained that she had
Tracheomalcia & Innominate artery compression (or in my terms a D shaped
instead of O shaped trachea and a restricting membrane at one point that closes
her trachea completely).<span style="mso-spacerun: yes;"> </span>This doctor
began to question me about her breathing and could not believe she had never
had a “trach” (my terms a hole cut in her throat to breathe).<span style="mso-spacerun: yes;"> </span>They said they had to see this, so they set
up a feeding study.<span style="mso-spacerun: yes;"> </span>I brought in the
items I pureed to feed her along with some deli meat, etc. and the doctors just
looked.<span style="mso-spacerun: yes;"> </span>They could not believe that this
was possible!<span style="mso-spacerun: yes;"> </span>I know how, and I’m
telling you know.<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">They
informed me that I would have to fly back and forth every other week to have
follow-up stretchings of her esophagus until it held, usually 6 months to 2
yrs.<span style="mso-spacerun: yes;"> </span>I was told she has extreme GERD
(her flap doesn’t close to her stomach).<span style="mso-spacerun: yes;">
</span>This was why she was throwing up and choking so much.<span style="mso-spacerun: yes;"> </span>Also, we discussed trying to remove the
membrane from her trachea to give her room to breathe.<span style="mso-spacerun: yes;"> </span>In all they praised her pediatrician, my husband,
and I for what we had created for our daughter to survive until then, they just
couldn’t believe it!<span style="mso-spacerun: yes;"> </span>Dr. Kaul added one
thing….He leaned over and kissed Abagayl and said, “Here’s to your quarantine!”<span style="mso-spacerun: yes;"> </span>From that moment on he said we’ve got it now,
she’s off quarantine!<span style="mso-spacerun: yes;"> </span>I cannot tell you
how my mind rushed at all of this and how God had held and delivered us!<span style="mso-spacerun: yes;"> </span>I knew traveling every other week would be
hard, especially leaving my young son.<span style="mso-spacerun: yes;">
</span>We committed and the process began.<o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">The weekly
dilatations were from 7/7/08-5/27/09.<span style="mso-spacerun: yes;">
</span>Abba and I would fly out one morning and back the next afternoon.<span style="mso-spacerun: yes;"> </span>Slowly she was stretched and her esophagus <u>DID
NOT TEAR</u> but began to open a little more each time.<span style="mso-spacerun: yes;"> </span>She would eat anything right after a
stretch.<span style="mso-spacerun: yes;"> </span>It was amazing to watch as
tears would roll down my face.<span style="mso-spacerun: yes;"> </span>Can you
imagine….a Mother that was told her daughter would never eat past a liquid
diet, and now I’m watching her eat steamed vegetables and fish!<o:p></o:p></span></span></div>
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<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">Each time we
went there was always something of God’s presence.<span style="mso-spacerun: yes;"> </span>Maybe it was me in a baseball cap, exhausted
and Abba with purple eyes that drew people to us, but I like to think that as I
spoke, “Through Christ all things are possible”, He sent his servants.<span style="mso-spacerun: yes;"> </span>Out of nowhere would come someone to carry a
bag, give a testimony, some taxi drivers witnessed and others had us pray for
them.<span style="mso-spacerun: yes;"> </span>I can’t explain how God worked
through those months, but He was ever present.<span style="mso-spacerun: yes;">
</span>To help or to use us.<span style="mso-spacerun: yes;"> </span>Each person
that saw her would just say, “What is it about your daughter?<span style="mso-spacerun: yes;"> </span>I can’t explain …”they said.<span style="mso-spacerun: yes;"> </span>I knew it was always God’s leading for an
open door.<span style="mso-spacerun: yes;"> </span>As I would began to speak
they would humble themselves from there busy schedule, down to Abba’s car seat
and just touch her.<span style="mso-spacerun: yes;"> </span>Many business
travelers would gather at the gate with us, me sitting by Abba in the floor,
and they would just listen to my witness.<span style="mso-spacerun: yes;">
</span>I never asked; they just came from nowhere.<span style="mso-spacerun: yes;"> </span>One day a young man from baggage helped me
from a taxi at the airport.<span style="mso-spacerun: yes;"> </span>Again, the
question, “What is it about your daughter?”<span style="mso-spacerun: yes;">
</span>As soon as I heard those words, I knew.<span style="mso-spacerun: yes;">
</span>This particular man, helped carry our bags.<span style="mso-spacerun: yes;"> </span>We thanked and prayed with him and said good-bye.<span style="mso-spacerun: yes;"> </span>When we got to our gate, he came again and
sat.<span style="mso-spacerun: yes;"> </span>He began to tell all that would
listen about her story.<span style="mso-spacerun: yes;"> </span>This was the largest
crowd.<span style="mso-spacerun: yes;"> </span>He was a faithful Christian and I
was humbled by him as he spoke.<span style="mso-spacerun: yes;"> </span>Such
love I have seen, but also such hatred as some tripped and bumped over us as we
travelled.<span style="mso-spacerun: yes;"> </span>For some I could only say a
silent prayer.<span style="mso-spacerun: yes;"> </span>If only to keep myself
together. <span style="mso-spacerun: yes;"> </span>When you are walking through a
trial it is amazing to what your eyes can be opened to.<span style="mso-spacerun: yes;"> </span>My blinders were taken off and can never be
put back.<span style="mso-spacerun: yes;"> </span>I see the person in a wheel
chair being asked to stand so they can check them in security, and YES I am
there.<span style="mso-spacerun: yes;"> </span>Just as those who were sent to be
there for me.<o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">Each trip,
we flew on such a tight schedule.<span style="mso-spacerun: yes;"> </span>We had
to get back so my husband could try to work the next day.<span style="mso-spacerun: yes;"> </span>He always watched our young son & I took
Abagayl.<span style="mso-spacerun: yes;"> </span>One surgery Abagayl came out to
recovery.<span style="mso-spacerun: yes;"> </span>They always called me back
early to help recover her breathing.<span style="mso-spacerun: yes;"> </span>She
had little quirks that helped her.<span style="mso-spacerun: yes;"> </span>I
went back and her monitor showed her “stats” the lowest I’d ever seen.<span style="mso-spacerun: yes;"> </span>We’d done this so many times.<span style="mso-spacerun: yes;"> </span>We hadn’t changed anything.<span style="mso-spacerun: yes;"> </span>What was wrong?<span style="mso-spacerun: yes;"> </span>She couldn’t really wake, her breathing was
shallow, something was different….<span style="mso-spacerun: yes;"> </span>Four
hours later, several attempts of oxygen, etc., they decided we had to be
admitted to see what was wrong.<span style="mso-spacerun: yes;"> </span>I
stepped out of recovery to call my husband, “Honey, we’re not gonna make it
home.<span style="mso-spacerun: yes;"> </span>Something’s not right.<span style="mso-spacerun: yes;"> </span>I’ll call ya later.”<span style="mso-spacerun: yes;"> </span>Tears ran down my face and again I breathed
in and out with “All things are possible through Christ.”<span style="mso-spacerun: yes;"> </span>Right then it hit me.<span style="mso-spacerun: yes;"> </span>We’re here for a reason, “Lord, show
me.”<span style="mso-spacerun: yes;"> </span>I went back into recovery filled
with strength.<span style="mso-spacerun: yes;"> </span>I told the nurse Abba
just needs a little help.<span style="mso-spacerun: yes;"> </span>I laid my
hands on her and said, What I have I give you….my Faith.<span style="mso-spacerun: yes;"> </span>Now Abba, let’s wait on God.”<span style="mso-spacerun: yes;"> </span>I set down in the rocker and the nurse just
kind of looked at me.<span style="mso-spacerun: yes;"> </span>You guessed
it<span style="mso-spacerun: yes;"> </span>Abba set straight up in the bed,
reached her hand as far as she could across the recovery room toward a
baby.<span style="mso-spacerun: yes;"> </span>Abba said with a strong breath,
“Baby Wake up, baby cry!” This baby had been in recovery the whole time we had
and was not going well.<span style="mso-spacerun: yes;"> </span>His parents had
not been allowed to come back yet and they were working constantly on him.<span style="mso-spacerun: yes;"> </span>This baby had not cried at all.<span style="mso-spacerun: yes;"> </span>The baby instantly cried out loudly and Abba lay
back onto her bed.<span style="mso-spacerun: yes;"> </span>What?<span style="mso-spacerun: yes;"> </span>How did Abba know the baby was there?<span style="mso-spacerun: yes;"> </span>The nurse said, “Did she just?????And that
baby just????”<span style="mso-spacerun: yes;"> </span>I simply sat in my rocker
with my hand on Abba and said, “Yes, she does that sometimes.”<span style="mso-spacerun: yes;"> </span>The baby’s parents were immediately brought
back and Abba’s “stats” went without hesitation to normal.<span style="mso-spacerun: yes;"> </span>The young baby and Abba walked out
together!<span style="mso-spacerun: yes;"> </span>Recovery didn’t try to explain
it; they just witnessed and were speechless.<span style="mso-spacerun: yes;">
</span>Seem a little far fetched for you?<span style="mso-spacerun: yes;">
</span>I’m sorry, but as I promised, I will witness of you Lord.<span style="mso-spacerun: yes;"> </span>I would not dare add nor take away from what
He has done.<span style="mso-spacerun: yes;"> </span>It is up to you to
discern.<span style="mso-spacerun: yes;"> </span>We did catch our flight and
made it home that evening.<span style="mso-spacerun: yes;"> </span>Wow, what if
I’d missed or been too defeated to wait upon the Lord?<o:p></o:p></span></span></div>
<div class="title">
</div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;"><span style="font-size: 10pt; line-height: 115%;">May of 2008,
Abagayl’s esophagus held at 16mm.<span style="mso-spacerun: yes;"> </span>I
looked a Dr. Kaul and said You have given her life!<span style="mso-spacerun: yes;"> </span>He corrected me by saying, “I am only a
vessel, Life comes from above.”<span style="mso-spacerun: yes;"> </span>Again, I
was humbled and those words echo each day.<span style="mso-spacerun: yes;">
</span>We still await the Aortopexy surgery.<span style="mso-spacerun: yes;">
</span>The CT Angiogram shows there is not enough room to remove the vascular
ring around her trachea yet.<span style="mso-spacerun: yes;"> </span>We are
waiting.<span style="mso-spacerun: yes;"> </span>Some children’s trachea grows
even with the restriction.</span><br style="mso-special-character: line-break;" />
</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">I am no one;
neither am I worthy to raise such a miracle child.<span style="mso-spacerun: yes;"> </span>I pray that you are blessed by her
testimony.<span style="mso-spacerun: yes;"> </span>It did not stop on May
2008.<span style="mso-spacerun: yes;"> </span>Since our travels, I guess many
churches know of Abba.<span style="mso-spacerun: yes;"> </span>They pray often.<span style="mso-spacerun: yes;"> </span>Mothers across the country email me.<span style="mso-spacerun: yes;"> </span>Many of their children are about 9 months old
and are having feeding trouble that no one can help them or understand.<span style="mso-spacerun: yes;"> </span>The diet and therapy I was led to use for
Abagayl is being passed on to many.<span style="mso-spacerun: yes;"> </span>I
get to hear the triumph as the mother’s use the recipes and tools that I did to
help their children.<span style="mso-spacerun: yes;"> </span>Many are exhausted
as I was and feel alone.<span style="mso-spacerun: yes;"> </span>What a
God-given ministry.<span style="mso-spacerun: yes;"> </span>This same diet can
be used with feeding tubes or to prevent feeding tubes.<span style="mso-spacerun: yes;"> </span>Elderly have been assisted when they’ve been
weak, can’t swallow, or have problems such as goiters.<span style="mso-spacerun: yes;"> </span>I would have never imagined how fulfilling it
is to see progress and victory, or to simply know that I’m there for those the
system has lost.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">Abagayl
turned 3 this year in August.<span style="mso-spacerun: yes;"> </span>She had
her 1<sup>st</sup> birthday cake!<span style="mso-spacerun: yes;"> </span>After
all the hard work to get her able to eat it, she doesn’t even like cake!<span style="mso-spacerun: yes;"> </span>Life is funny!<span style="mso-spacerun: yes;"> </span>She prefers cookies!<o:p></o:p></span></span></div>
<div class="title">
</div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">It is now
February of 2010, Abba has began choking excessively again.<span style="mso-spacerun: yes;"> </span>I do not understand.<span style="mso-spacerun: yes;"> </span>I notified Cincinnati Children’s Hosp. and
they are working fast to get us and appointment.<span style="mso-spacerun: yes;"> </span>I feel far from God as he presses on me that
a 3-6 month term is coming up again.<span style="mso-spacerun: yes;"> </span>I
do not have the strength to start over with the dilatations or Lord no, not
another complication.<span style="mso-spacerun: yes;"> </span>I can only praise
God for His past faithfulness and even though I don’t “feel” Him, I must rely
on His mercy. <span style="mso-spacerun: yes;"> </span>I read my bible and the
words just go void, nothing returning, no presence.<span style="mso-spacerun: yes;"> </span>I am very confused but I go forward.<span style="mso-spacerun: yes;"> </span>All is scheduled for April 7.<span style="mso-spacerun: yes;"> </span>The wait without God’s presence is
unbearable.<span style="mso-spacerun: yes;"> </span>I know there is a lesson
here so I wait.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">In Ohio, we
begin.<span style="mso-spacerun: yes;"> </span>When surgery is over, I honestly
held my breath.<span style="mso-spacerun: yes;"> </span>Dr. Kaul came out
first.<span style="mso-spacerun: yes;"> </span>He said her esophagus had held
mostly and he went ahead and was able to clip a little more scar tissue.<span style="mso-spacerun: yes;"> </span>There is one big piece left and though he
wants to remove it, he’s cautious.<span style="mso-spacerun: yes;"> </span>Next
Dr. Boesch tells me that her tracheomalacia is unchanged (I was hoping her
trachea had been able to widen even with the artery compression).<span style="mso-spacerun: yes;"> </span>Ok……this seemed like excellent news and
Praise God, it is.<span style="mso-spacerun: yes;"> </span>Thank you Lord.<span style="mso-spacerun: yes;"> </span>Even though, through works or seeking your
presence, I could not gain access to you.<span style="mso-spacerun: yes;">
</span>I could not earn your favor.<span style="mso-spacerun: yes;">
</span>Lesson learned:<span style="mso-spacerun: yes;"> </span>God loves me
unconditionally.<span style="mso-spacerun: yes;"> </span>I don’t think I could
have ever accepted this had it not been for Him tying my hands and
thoughts.<span style="mso-spacerun: yes;"> </span>I could do nothing to persuade
Him for a healing-He gave it freely and holds it still.<o:p></o:p></span></span></div>
<div class="title">
</div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">I began to
question why Abba could be choking and what was all the loss of breath.<span style="mso-spacerun: yes;"> </span>What could be going on?<span style="mso-spacerun: yes;"> </span>Dr. Kaul immediately…. (here it came)….wanted
the feeding team to assess Abba and begin her on a 3-6 month intense therapy
every week.<span style="mso-spacerun: yes;"> </span>They would be teaching her
to chew properly now that she had molars to grind, writing a medical plan for
school (Her condition changes daily and you must know the full spectrum of
prevention and emergent reliefs.<span style="mso-spacerun: yes;"> </span>These
go against all natural ways of relieving a choking victim.), working with her
respiratory problems by teaching her techniques to prevent her trachea from
collapsing when playing.<o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">I was and I
am fully on board.<span style="mso-spacerun: yes;"> </span>I hesitate now at the
3-6 month stay.<span style="mso-spacerun: yes;"> </span>What will I do with my
son who will start 2<sup>nd</sup> grade?<span style="mso-spacerun: yes;">
</span>Will he start school in Ohio?<span style="mso-spacerun: yes;"> </span>I
begin to pray for another door.<span style="mso-spacerun: yes;"> </span>This is
where I am today, patiently waiting for God to send help or knowledge of the
next step.<span style="mso-spacerun: yes;"> </span>Our finances and marriage
cannot endure much more.<span style="mso-spacerun: yes;"> </span>I give it all
to Him.<span style="mso-spacerun: yes;"> </span>I know victory is ahead,
whatever it looks like.<span style="mso-spacerun: yes;"> </span>I am willing.<span style="mso-spacerun: yes;"> </span>It is now June and I have no idea what to
do.<span style="mso-spacerun: yes;"> </span>His presence has returned in full
force; I am at peace as He works.<span style="mso-spacerun: yes;"> </span>Lord I
ask, “Work fast, I need you!”<o:p></o:p></span></span></div>
<div class="title">
</div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="color: #333333; font-family: "Tahoma","sans-serif"; font-size: 8.5pt; line-height: 115%;">I am taken to Mark 5:22-43 My version:
Jarius's daughter is very sick. He seeks out Jesus and pleaded with Him.
"My little girl is dying" "Come and put your hands on her so
that she will be healed and live." No longer had he asked this of Jesus
that a large crowd pressed in on Jesus. The woman bleeding of 12 years boldly
fights her way to Jesus and touches the hem of his garment and was healed
instantly. Jesus is distracted from Jarius and turns to the woman. I can just
see Jarius tapping his foot in urgency....My daughter, my daughter. The
disciples argue how can you tell someone touched you in this crowd? (delaying
Jesus more). The woman fell at Jesus feet. (delay delay). After Jesus has
addressed this woman He returns to Jarius but by now Jarius has received the
news, his daughter is dead. Jesus said, “Do not be afraid; only BELIEVE.”<span style="mso-spacerun: yes;"> </span>Jarius does not lose faith, nor does he
grumble at the waiting. Lord, give me the patience of Jarius. In faith he knew
Jesus would come, and a delay was just an opportunity to witness God's glory.
Sometimes when we are waiting on a miracle, a greater work is being done by
Christ. Maybe it is in us before the full victory will be realized. Or in
someone else that we may be strengthened in our Faith. Let me not "tap my
foot" at the delay, but embrace each day as I await His touch.</span><span style="font-size: 10pt; line-height: 115%;"><o:p></o:p></span></div>
<div class="title">
</div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">I now ask
you to seek your heart.<span style="mso-spacerun: yes;"> </span>Look for
truth.<span style="mso-spacerun: yes;"> </span>I do not know if you are the
vessel God has chosen to help us or if He has other plans for meeting our
financial needs.<span style="mso-spacerun: yes;"> </span>I look to your
discernment.<span style="mso-spacerun: yes;"> </span>Abagayl has a part-time
care aid from Medicaid.<span style="mso-spacerun: yes;"> </span>They will not
let me work.<span style="mso-spacerun: yes;"> </span>I have to be here for all
medications.<span style="mso-spacerun: yes;"> </span>This is how I have found my
ministry.<span style="mso-spacerun: yes;"> </span>I know God is faithful to meet
all our needs.<span style="mso-spacerun: yes;"> </span>We have had our home for
sale since 2008.<span style="mso-spacerun: yes;"> </span>The economy has not
sent a buyer yet.<span style="mso-spacerun: yes;"> My Husband's </span>work has
slowed.<span style="mso-spacerun: yes;"> </span>We pulled all our equity out
when Abba was born to cover medical expenses.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">We currently
receive WIC from SC for Abagayl’s pediasure.<span style="mso-spacerun: yes;">
</span>This is due to her nutritional needs and disability.<span style="mso-spacerun: yes;"> </span>We have received no other monetary relief
from family or any other source.<o:p></o:p></span></span></div>
<div class="title">
</div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">I do feel
called to the missionary field.<span style="mso-spacerun: yes;"> </span>I have
been humbled and learned to walk. God continues to press upon me, “I have shown
you the light, I am the same yesterday as today; Do not hide this light under a
basket.<span style="mso-spacerun: yes;"> </span>As I search His word, I find
Matthew 5: 14-16 …”Nor do they light a lamp and put it under a basket…”<span style="mso-spacerun: yes;"> </span>Many times I am reminded of John 9: that ask
..”Who sinned, this man or his parents that he was born blind”<span style="mso-spacerun: yes;"> </span>I have searched myself over and over and only
can answer the same Neither, but that God would be glorified”<span style="mso-spacerun: yes;"> </span>I give all the glory to God for the last four
years.<span style="mso-spacerun: yes;"> </span>I would not change any hardship
for I would not be what He is seeking to create.<o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">There is so
much more I would like to witness of.<span style="mso-spacerun: yes;">
</span>Many small moments that were woven into our faith; the testimonies of
the servants God sent; the feeding stories of children using this special
technique and diet.<span style="mso-spacerun: yes;"> </span>God has put on my
heart an end result of writing a book.<span style="mso-spacerun: yes;">
</span>He’s even led me to have faith and it will be written.<span style="mso-spacerun: yes;"> </span>The name:<span style="mso-spacerun: yes;">
</span>I cried Abba.<span style="mso-spacerun: yes;"> </span>For I cried unto my
Father in Heaven (Abba), and he heard my prayers and has carried me.<o:p></o:p></span></span></div>
<div class="title">
<span style="font-size: 10pt; line-height: 115%;"><o:p><span style="font-family: Calibri;"> </span></o:p></span></div>
<div class="title">
</div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-size: 10pt; line-height: 115%;"><span style="font-family: Calibri;">We humbly
accept your prayers for God’s provision for His way is the perfect will. <o:p></o:p></span></span></div>
<div class="title">
</div>Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com0tag:blogger.com,1999:blog-6782424935953132322.post-8319095648553393512012-06-02T08:46:00.000-07:002012-06-02T08:46:03.248-07:00<span style="font-size: large;">Hello my name is Christy. Welcome to my blog!</span><br />
<br />
<span style="font-size: large;">This new and exciting journey for me is driven by my passion to help families like mine who are touched by EA/TEF. Passion has plunged me into creating this blog! I am so excited to share my blog with you and I hope you find it helpful.</span><br />
<br />
<span style="font-size: large;">What is EA/TEF you ask? Esophageal Atresia (EA) is a birth defect in which the esophagus, which connects the mouth to the stomach, is shortened and closed off at some point along its length. This defect almost always occurs in conjunction with tracheoesophageal fistula (TEF), a condition in which the esophagus is improperly attached to the trachea, the "windpipe" that carries air into the lungs. It is believed that these defects occur around the fourth week of pregancy when the digestive tract is forming. There is no known cause for the defects. </span><br />
<br />
<span style="font-size: large;">I was born with this condition in 1963 and have spent my entire life learning to cope with and handle the challenges facing individuals living with this rare birth defect. </span><br />
<br />
<span style="font-size: large;">For many years I have had a calling to do something to help others with EA/TEF, and in March of 2012 I was inspired to start the non-profit organization Christy's Courage. The mission of Christy's Courage is to raise money to support families challenged by EA/TEF by providing emotional and financial support. </span><br />
<br />
<span style="font-size: large;">Once I found the courage to step into this new adventure the people and resources I needed have manifested in ways I could have never imagined! Living my life with this condition has taken a great deal of courage on a daily basis. Through Christy's Courage I hope to inspire others with EA/TEF to live their lives fully despite the challenges they may face. I have not let my condition hinder me from going to college, having a successful career, and sharing 26 years with the love of my life. I want you to know that anything is possible for your life. All you have to do is dream it and take action! That's what I'm doing now by starting this blog<span style="font-family: inherit;">. </span></span><br />
<br />
<span style="font-size: large;"><span style="font-family: inherit;">In the future, please come back for more helpful information I have to share about life with EA/TEF. I look forward to connecting with you! </span></span>Anonymoushttp://www.blogger.com/profile/17925161341162791263noreply@blogger.com1