Hello my name is Christy. Welcome to my blog!
This new and exciting journey for me is driven by my passion to help families like mine who are touched by EA/TEF. Passion has plunged me into creating this blog! I am so excited to share my blog with you and I hope you find it helpful.
What is EA/TEF you ask? Esophageal Atresia (EA) is a birth defect in which the esophagus, which connects the mouth to the stomach, is shortened and closed off at some point along its length. This defect almost always occurs in conjunction with tracheoesophageal fistula (TEF), a condition in which the esophagus is improperly attached to the trachea, the "windpipe" that carries air into the lungs. It is believed that these defects occur around the fourth week of pregancy when the digestive tract is forming. There is no known cause for the defects.
I was born with this condition in 1963 and have spent my entire life learning to cope with and handle the challenges facing individuals living with this rare birth defect.
For many years I have had a calling to do something to help others with EA/TEF, and in March of 2012 I was inspired to start the non-profit organization Christy's Courage. The mission of Christy's Courage is to raise money to support families challenged by EA/TEF by providing emotional and financial support.
Once I found the courage to step into this new adventure the people and resources I needed have manifested in ways I could have never imagined! Living my life with this condition has taken a great deal of courage on a daily basis. Through Christy's Courage I hope to inspire others with EA/TEF to live their lives fully despite the challenges they may face. I have not let my condition hinder me from going to college, having a successful career, and sharing 26 years with the love of my life. I want you to know that anything is possible for your life. All you have to do is dream it and take action! That's what I'm doing now by starting this blog.
In the future, please come back for more helpful information I have to share about life with EA/TEF. I look forward to connecting with you!