Christy's Courage - Living with EA/TEF
Thursday, January 18, 2018
Christy is Back
Welcome back Everyone!
I have been gone for a while, as you have figured out by now.
In 2015 I was diagnosed with Rheumatoid Arthritis. The RA is currently under control with meds, thanks be to God and modern medicine.
Due to the RA I experience extreme fatigue, so trying to hold down a full time job, part time non profit, and a household is a bit more challenging.
With that update I wonder just what God has in mind for the remainder of my life, hummm
I will continue to be patient even though it wears thin at times, strong until I need to recharge, and continue to try to make a difference for those I can reach with EA.
Peace & Blessings
Christy
Sunday, January 12, 2014
Walking
Walking:
We do lots of walking, up hills, down hills, through streets, across bridges, on pavement, in circles, with groups, for charity, for our health, and many other reasons we walk. I think mainly we walk to take us from point A to point B. My point to walking is, it takes our legs for us to be able to walk. I am very thankful to have both of my legs, not toned, muscular legs, but none the less my very on set. However, I find it unsettling to my soul when someone ask me why I limp. Mind you I don't limp all the time, only when I am tired or am wearing those high heel shoes that are not good for posture or feet anyway. When asked this question it is not something I want to expound on as it would be a lengthy explanation leading to my life history, which is no ones business except those who I choose to share it with. I ALWAYS get extremely nervous answering this question, goes back to childhood wanting not to be different, and I am stumped for an answer so, most of the time I am not sure what I answer because I have one of those out of body experiences where you say something but you don't remember what. As age has conquered some of my fears I try to handle this question with courage and the realization of giving a short answer, be it the truth or my choice at the time, will send them on their way. Yes, we all look at people limping wondering what has caused them to walk in this manner, is it because we are curious or just plain ignorant and uncaring of others feelings? Next time you find yourself staring at someone walking in a manner you find unlike your perfect stride, try to put yourself in their circumstances and your glare should become softer and kinder.
Now go out and walk!
We do lots of walking, up hills, down hills, through streets, across bridges, on pavement, in circles, with groups, for charity, for our health, and many other reasons we walk. I think mainly we walk to take us from point A to point B. My point to walking is, it takes our legs for us to be able to walk. I am very thankful to have both of my legs, not toned, muscular legs, but none the less my very on set. However, I find it unsettling to my soul when someone ask me why I limp. Mind you I don't limp all the time, only when I am tired or am wearing those high heel shoes that are not good for posture or feet anyway. When asked this question it is not something I want to expound on as it would be a lengthy explanation leading to my life history, which is no ones business except those who I choose to share it with. I ALWAYS get extremely nervous answering this question, goes back to childhood wanting not to be different, and I am stumped for an answer so, most of the time I am not sure what I answer because I have one of those out of body experiences where you say something but you don't remember what. As age has conquered some of my fears I try to handle this question with courage and the realization of giving a short answer, be it the truth or my choice at the time, will send them on their way. Yes, we all look at people limping wondering what has caused them to walk in this manner, is it because we are curious or just plain ignorant and uncaring of others feelings? Next time you find yourself staring at someone walking in a manner you find unlike your perfect stride, try to put yourself in their circumstances and your glare should become softer and kinder.
Now go out and walk!
Thursday, December 5, 2013
Turtlenecks
Turtlenecks; red, green, blue, yellow, white, purple, pink, long sleeve, short sleeve, mock style, just think; Every morning, noon and night I must wear them to the brink, to cover up my scars and that just plain stinks! One day I will shed these high collars and return them to their proper place the Turtle!
Tuesday, June 4, 2013
Looking In The Mirror
Looking in the mirror what do I see?
Two big, brown eyes staring back at me.
Looking in the mirror what do I see?
Dark wavy hair flowing so free.
Looking in the mirror what do I see?
A smile so bold it could capture the sea.
Looking in the mirror what do I see?
The reflection of a girl that is truly me.
Two big, brown eyes staring back at me.
Looking in the mirror what do I see?
Dark wavy hair flowing so free.
Looking in the mirror what do I see?
A smile so bold it could capture the sea.
Looking in the mirror what do I see?
The reflection of a girl that is truly me.
Sunday, April 21, 2013
Summer Time
SUMMER TIME: I love the heat of the summer, tanning by the pool or ocean, smell of freshly mowed grass, flip flops, beautiful green foliage everywhere, outside festivals, and the length of the daylight hours.
My least favorite and hardest thing to cope with during the summer is what to wear. Due to my many surgeries I have a road map all over my torso, not to mention the under the skin bump, better known as my esophagus. This makes it EXTREMELY difficult to find a swimsuit, tops and shirts that camouflage my scars, yet keep me cool. Each time I go to shop for these items I all but break down into tears because of this daunting task. Sometimes I handle it better than others. This brings me to two different events.
Just recently I was shopping for high neck tops/shirts for the summer. As I was looking through the racks it dawned on me that all the other Ladies in the same store did not know how blessed they were to choose whatever fashion appealed to them. I took about eight pieces to the dressing room and came out with two. One that zipped up the front and the other that buttoned to the top. How ridiculous I will look this summer with these two shirts up to my neck, but it is better than the alternative I would experience. I made my purchases and later in the day called my Mother to tell her about my conquest of two shirts.
The other shopping excursion occurred earlier than the one just described. I was again shopping for tops/shirts and I had an epiphany, that even though I could not choose what I would really like to wear I had money to buy what I could wear and thought that was a blessing.
The swimsuit issue was resolved by my more than EXTRAORDINARY Mother. She found a wonderful Lady who professionally designs gowns, swimsuits, etc for pageants. This beautiful woman graciously made me many swimsuits to die for. I now have one of a kind suits and proudly wear them at the pool and beach.
Both of these shopping events probably happen to most women for some reason or another. We must remember when we are thinking that someone has more choices than we do that is not necessarily so. Be happy in the skin we are in for someone else's challenges may be greater.
My least favorite and hardest thing to cope with during the summer is what to wear. Due to my many surgeries I have a road map all over my torso, not to mention the under the skin bump, better known as my esophagus. This makes it EXTREMELY difficult to find a swimsuit, tops and shirts that camouflage my scars, yet keep me cool. Each time I go to shop for these items I all but break down into tears because of this daunting task. Sometimes I handle it better than others. This brings me to two different events.
Just recently I was shopping for high neck tops/shirts for the summer. As I was looking through the racks it dawned on me that all the other Ladies in the same store did not know how blessed they were to choose whatever fashion appealed to them. I took about eight pieces to the dressing room and came out with two. One that zipped up the front and the other that buttoned to the top. How ridiculous I will look this summer with these two shirts up to my neck, but it is better than the alternative I would experience. I made my purchases and later in the day called my Mother to tell her about my conquest of two shirts.
The other shopping excursion occurred earlier than the one just described. I was again shopping for tops/shirts and I had an epiphany, that even though I could not choose what I would really like to wear I had money to buy what I could wear and thought that was a blessing.
The swimsuit issue was resolved by my more than EXTRAORDINARY Mother. She found a wonderful Lady who professionally designs gowns, swimsuits, etc for pageants. This beautiful woman graciously made me many swimsuits to die for. I now have one of a kind suits and proudly wear them at the pool and beach.
Both of these shopping events probably happen to most women for some reason or another. We must remember when we are thinking that someone has more choices than we do that is not necessarily so. Be happy in the skin we are in for someone else's challenges may be greater.
Sunday, February 17, 2013
What is a Miracle?
What is a miracle? Webster's definition of miracle is: "an extraordinary event manifesting divine intervention in human affairs".
A Doctor once told my parents, "The only thing that will save your baby is a miracle".
So, if that was the truth, then I must be a miracle. One would think that a miracle has special privileges or magical attributes. With my miracle status why has my life been full of struggles, bad choices, and not bluebirds of happiness? The only one who knows the answer to that question is the one who preformed the miracle of saving my life, God. I guess once the miracle of life was given to me, it was up to me to find those bluebirds of happiness. As I have gotten older life has become somewhat easier however, I am still struggling to define why am I a miracle?
A Doctor once told my parents, "The only thing that will save your baby is a miracle".
So, if that was the truth, then I must be a miracle. One would think that a miracle has special privileges or magical attributes. With my miracle status why has my life been full of struggles, bad choices, and not bluebirds of happiness? The only one who knows the answer to that question is the one who preformed the miracle of saving my life, God. I guess once the miracle of life was given to me, it was up to me to find those bluebirds of happiness. As I have gotten older life has become somewhat easier however, I am still struggling to define why am I a miracle?
Saturday, January 5, 2013
Jeopardy Question
What is mental or moral strength to venture, persevere, and withstand danger, fear, or difficulty?
Answer: Courage
Answer: Courage
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